English French German Italian Spanish

Family Conference Mentor Program

We understand it can be challenging to come to a meeting where you don’t know anyone—yet. We have created our Mentor Program to help facilitate this process and match conference veterans with first-time attendees.

What is the mentor's role? To be a friendly face, to help make introductions, to share your experience of caring for or being an individual with an NBIA disorder. It's a real gift for anyone who is new to a group to have an experienced person come along side and be a guide.

If you wish to participate either as a conference veteran or first-time attendee, please check YES on the conference registration form where it asks if you are interested in participating in the Mentor Program.

We will match families and ask that the conference veterans reach out before the conference and introduce themselves and answer any questions first-time attendees might have.

We will also have a get together for all those participating on Thursday, June 1 from 5:00 – 6:00 pm. Matched families will have an opportunity to meet individually with each other and as a group with the other participating families.



Text Size

2017 Conference Quick Jump

Click the buttons below for more information about the NBIA Family Conference.

Conference Homepage

2017 Conference Photos

Mentor Program



Appointments with NBIA Experts


Hotel Reservations

Hotel Photos

Care Room

RARE Bear Program


Helpful Information

Tax Deduction Info

Forms & Downloadables

Appointment with NBIA Experts Form

Scholarship Application

Care Room Information

RARE Bear Consent Form

Conference Sponsors Needed

Sponsorship Request

Sponsorship Form

Help Other NBIA Families Attend

Please support scholarships for needy families to attend conference. If you’d like to help a family who would not otherwise be able to afford the conference, we hope you’ll consider donating to our Conference Scholarship Fund. We appreciate the support this program has always received, and our families are so grateful for this opportunity to connect with others and make lasting friendships.

Please consider a donation today and put “Conference Scholarship Fund” in the “additional info box” so we know to designate it properly.


Sign-up for our Newsletter