The NBIA Disorders Association is always looking to improve and grow so that it may best serve the needs of its families and supporters. We are asking all NBIA Disorders families to complete a 10 minute survey by October 6, 2014 In order to help us better understand you, your family, and your goals for our organization.
A survey of this scope has not been conducted by the NBIA Disorders Association in several years, making this of even more importance, as we know many things have changed since then. We continuously seek to provide meaningful and relevant programming for you, and your input is critical in helping us achieve this.
We truly appreciate your time in helping us better serve you and your family. Should you have any questions regarding this survey, please contact Lindsey Zipkin, Development Director at LZipkin@NBIAdisorders.org or (619)303-7899.