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AISNAF-Associazione Italiana Sindromi Neurodegenerative Da Accumulo Di Ferro

The Associazione Italiana Sindromi Neurodegenerative Da Accumulo Di Ferro (AISNAF) is holding their first family meeting at the Green Park Hotel in Bologna, Italy, October 10-11, 2015. Researchers, including Dr. Susan Hayflick, Director of the NBIA Disorders Association Scientific & Medical Advisory Board, will be discussing their research, and clinicians familiar with NBIA disorders will also be participating and sharing their knowledge.

NBIA Disorders Association President Patricia Wood, along with Angelika Klucken, chair of Hoffnungsbaum e.V., the German NBIA patient organization,  will be sharing the history of their organizations with the Italian families.  

They will also be discussing the role of patient organizations in TIRCON and the growth and potential of the NBIA Alliance.

 

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