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2015 Newsletters

2015 October/November Newsletter

12 pages of the latest news and informative articles including “TIRCON grant ends, but foundation laid for advancing NBIA research, patient advocacy,” “New board and development volunteers sought, “ “New research policy took effect Oct. 1,” “Join our team: Together We Can,” “Dream Big: A new, easy way to support NBIA each month,” “In the fight against FAHN, We Will Never Give Up Hope,” “Golf marathon brings in over $35,000 for NBIA research grant, initiatives.”

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2015 June/July Newsletter

NBIA 2015 June/July Newsletter

16 pages of the latest news and informative articles including “Eighth international conference one for the record books,” NBIA Disorders Association awards $157,725 in grants,” “Researchers using new tools to connect pieces of NBIA puzzle,” “New campaign for BPAN research exceeds goal,” “Being as active as possible is key to a better quality of life,” “Pace of NBIA research accelerates as new studies start, older ones advance,” “Two trials underway to test NBIA therapies,” “INAD families launch research by raising $150,000.”

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2015 February/March Newsletter

2015 February/March Newsletter

4 pages of the latest news and informative articles including “2014 PKAN grant award to study link between PKAN and stroke,” “Eighth International Family Conference registration now open,” NBIA families help mark Rare Disease Day 2015,” “2015 Research Grant Cycle Open For Applications,” and “Together for Tomorrow initiative brings in $70,000.”

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