English French German Italian Spanish

2016 Newsletters

2016 October/November Newsletter

4 pages of the latest news and informative articles including “Next round of NBIA research grants to focus on BPAN and FAHN,” “Families, businesses and other pitch in to advance NBIA research,” and “Message from the President.”

Read Newsletter

2016 August/September Newsletter

16 pages of the latest news and informative articles including “20 years old! We danced, picnicked and made new plans,” “Attention researchers: Save this date in April to meet,” “Researchers in Europe host meeting with BPAN families,” “Identifying NBIA research priorities key topic at meeting of families, researchers and board,” “Board adds new member” “Italian lab receives grant, drug access in quest to uncover PKAN treatments,” “Two more researchers join association’s Scientific & Medical Advisory Board,” “European grant will help researchers test drugs and supplements for MPAN,” “Mark your calendars: Our ninth family conference comes to Chicago in June,.” Board names fund in honor of founder and her daughter.”

Read Newsletter

2016 February/March Newsletter

16 pages of the latest news and informative articles including “NBIA Disorders Association turns 20; time to celebrate our anniversary,” “NBIA Alliance collaborating on vital projects, adding members,” “NBIA drug receives key designation in Europe,” “Ardent NBIA fundraiser steps down from board,” “Association ends fiscal year with more donors, higher average gifts,” “2015 sets record for Giving Tuesday gifts,” “Girl with rare disease dedicates bike ride to NBIA research,” “Band Together for a Cure brings in $61,000,” “Mom turns to FirstGiving to fight daughter’s devastating diagnosis.”

Read Newsletter

Text Size

Donate Now

Sign-up for our Newsletter