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Site Index
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All links are current and were updated as of February 5,
2003. Updates after February 5, 2003 are indicated next to each link
listed below. |
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About Us
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NBIA FAQ
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Family
Support
- Message from President
» December, 2007 - [updated
1/27/08]
» August, 2006 [updated
9/18/06]
» April, 2006 [updated
5/1/06]
» December, 2005 [updated
3/6/06]
» April, 2005
» August, 2003
[updated 8/16/05]
- Networking Program
- SibsConnect [updated
4/3/07]
- NBIA Families
(pictures)
» Page One [updated
1/19/07]
» Page Two
» Page Three [updated
3/19/04]
» Page Four [updated
3/17/04]
- Family Stories
[updated 12/1/09]
- Guest Book
[updated 1/14/10]
- B5 Experiences
[updated 7/13/07]
- Ask the Doctor
[updated 8/16/05]
- 4th Int. NBIA Family Conference
» Conference
overview [updated 9/14/07]
» DBS
session [updated
9/14/07]
» Pain
Management session [updated
9/14/07]
» Research
Update session [updated 9/14/07]
» Stem
cells session [updated 9/14/07]
» BioBank
at conference [updated 9/14/07]
Photo Gallery
» General Conference Pictures
[updated 7/11/07]
» NBIA Families [updated
7/11/07]
» Sessions [updated
7/11/07]
» Picnic [updated
7/11/07]
- 3rd Int. NBIA Family Conference [updated
12/4/05]
» Conference Wrap up Article [updated
12/9/05]
» NBIA Quotes [updated
12/9/05]
Photo Gallery
» General Conference pictures
[updated
8/17/05]
» NBIA families [updated
8/16/05]
» Care room [updated
8/16/05]
» Saturday Night Dessert Social [updated 8/15/05]
Power Point Presentations [updated 8/15/05]
» DBS/Baclofen
Pump/Botox - May, 2005 Dr. Penny Hogarth [updated 8/15/05]
» OHSU
Research Update - May, 2005 Dr. Susan Hayflic [updated 8/15/05]
» PKAN
study - Allison Gregory, genetic counselor, OHSU [updated 8/15/05]
» Understanding
genes - Allison Gregory, genetic counselor, OHSU [updated 8/15/05]
- 2nd Int. HSSA Family
Conference
» Photo Gallery
- 1st Int. HSSA Family
Conference
» Photo
Gallery
- First
NBIA Family Conference in Germany - 2004 [updated
12/19/04]
- Third
NBIA Family Conference in Germany - 2006 [updated 4/3/07]
- Helpful Links:
» Government
» Assistive Technology
» Pharmaceutical
» Non-Profit Organizations
[updated 4/21/03]
» Parenting [updated
6/13/06]
» Wish Organizations
» Travel
» General
[updated 2/26/08]
- Family
Surveys [updated 4/21/03]
- Memorials
[updated 1/29/10]
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