Site Index >>> All links are current and were updated as of February 5, 2003. Updates after February 5, 2003 are indicated next to each link listed below.
	About Us Officers/Board of Trustees [updated 1/28/08] Financials / Tax Returns [updated 6/11/10] » 2009 Tax Return [updated 6/11/10] » 2008 Tax Return [updated 6/21/10] » 2007 Tax Return [updated 3/17/08] » 2006 Financial Statement [updated 3/17/08] » 2005 Financial Report [updated 12/9/05] » Pie Charts 2003-2009 [updated 5/1/10] Scientific & Medical Advisory Board [updated 1/28/10] Genetic Counselor [updated 11/3/03] Goals of NBIA Disorders Association How NBIA Disorders Association Began Why we changed our name to NBIA Disorders Association The First Decade [updated 5/1/06]
	NBIA FAQ What is NBIA? [updated 12/04/07] » German translation [updated 8/20/09] Diagnosing Patients An Interview with Dr. Susan Hayflick » German translation [updated 12/5/07] GeneReviews - PKAN [updated 10/1/03] INAD Genetics Testing Information » INAD Patient brochure [updated 2/6/08] » INAD Primary care brochure [updated 2/6/08] » INAD Genetics professional brochure [updated 2/6/08]
	Family Support Message from President » December, 2007 - [updated 1/27/08] » August, 2006 [updated 9/18/06] » April, 2006 [updated 5/1/06] » December, 2005 [updated 3/6/06] » April, 2005 » August, 2003 [updated 8/16/05] Networking Program SibsConnect [updated 4/3/07] NBIA Families (pictures) » Page One [updated 1/19/07] » Page Two » Page Three [updated 3/19/04] » Page Four [updated 3/17/04] Family Stories [updated 12/1/09] Guest Book [updated 1/14/10] B5 Experiences [updated 7/13/07] Ask the Doctor [updated 8/16/05] 4th Int. NBIA Family Conference » Conference overview [updated 9/14/07] » DBS session [updated 9/14/07] » Pain Management session [updated 9/14/07] » Research Update session [updated 9/14/07] » Stem cells session [updated 9/14/07] » BioBank at conference [updated 9/14/07] Photo Gallery » General Conference Pictures [updated 7/11/07] » NBIA Families [updated 7/11/07] » Sessions [updated 7/11/07] » Picnic [updated 7/11/07] 3rd Int. NBIA Family Conference [updated 12/4/05] » Conference Wrap up Article [updated 12/9/05] » NBIA Quotes [updated 12/9/05] Photo Gallery » General Conference pictures [updated 8/17/05] » NBIA families [updated 8/16/05] » Care room [updated 8/16/05] » Saturday Night Dessert Social [updated 8/15/05] Power Point Presentations [updated 8/15/05] » DBS/Baclofen Pump/Botox - May, 2005 Dr. Penny Hogarth [updated 8/15/05] » OHSU Research Update - May, 2005 Dr. Susan Hayflic [updated 8/15/05] » PKAN study - Allison Gregory, genetic counselor, OHSU [updated 8/15/05] » Understanding genes - Allison Gregory, genetic counselor, OHSU [updated 8/15/05] 2nd Int. HSSA Family Conference » Photo Gallery 1st Int. HSSA Family Conference » Photo Gallery First NBIA Family Conference in Germany - 2004 [updated 12/19/04] Third NBIA Family Conference in Germany - 2006 [updated 4/3/07] Helpful Links: » Government » Assistive Technology » Pharmaceutical » Non-Profit Organizations [updated 4/21/03] » Parenting [updated 6/13/06] » Wish Organizations » Travel » General [updated 2/26/08] Family Surveys [updated 4/21/03] Memorials [updated 1/29/10]
	Listserv NBIAdisorders Listserv [updated 7/17/04]
	Research What's new in NBIA Research [updated 1/28/08] Second Scientific Workshop - May, 2005 [updated 8/16/05] » Second Scientific Workshop Article [updated 12/9/05] HSS Gene found - July 23, 2001 » Another NBIA gene found - 2006 [updated 1/28/08] First Scientific Workshop on HSS Research Registry [updated 8/16/05] INAD Gene Found [updated 1/28/08]
	Grant Info 2009 Grant Application [updated 2/09/09]
	Literature Medical Journal Articles [updated 1/25/08] Newsletter Archives [updated 4/22/10] Newsletter Articles: » NBIA: Who’s Under Our Umbrella? [updated 1/28/08] » New study on deep brain stimulation shows improvement in all 6 patients - August 2005  » A date with Sen. Ted Kennedy’s office - April 2004 » Tackling NBIA pain with morphine:    Difficult issue requires much thought - April 2004  » Manage Your Own Medical Journey - April 2004  » Botox Injections - December 2002  » Baclofen Pump Warning - April 2002  » Baclofen Pump Caution - December 2003  » Chelation - March 2000  » Retinitis Pigmentosa - July 1999 Conference Presentations:  » DBS/Baclofen Pump/Botox - May 2002  » NBIA Genetics - May 2002 News [updated 1/28/04]
	How You Can Help Volunteers [updated 1/28/08] » Volunteer form Donations [updated 1/15/08] NBIA Cookbooks / T-shirts / Polo shirts / Pins [updated 7/7/07] NBIA Fundraising [updated 1/28/08] » April 2008 - Upcoming Events [updated 4/1/08] » Where Do The Donations Go? [updated 4/3/07] Easy, Free, Ways to Contribute » iGive.Com - online shopping program; 654 big name stores participating » GoodSearch.Com - choosing this as your search engine contributes to our organization every time you search. [updated 4/7/06]
	Merchandise NBIA Cookbooks / T-shirts / Polo shirts / Pins [updated 7/7/07]
	Site Search Search the NBIA Disorders Association Web Site
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