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NBIA Disorders Grant

Research Call for PKAN grant applications

We are now accepting grant applications for PKAN research. Deadline for submission is September 15, 2014. Our research priorities for the 2014 NBIA-PKAN grant cycle are:

Support studies to:

  • Develop rational therapeutics for PKAN
  • Discover and validate biomarkers of disease in PKAN
  • Delineate the molecular cascades that lead to early cellular changes in PKAN
  • Advance understanding of why the globus pallidus is selectively vulnerable to defective PANK2
  • Propose novel ideas to advance the understanding or treatment of PKAN
  ...More Info

Research Grants

Board awards 3 research grants in March totaling $239,680 to study NBIA

The NBIA Disorders Association board is awarding $239,680 to three research projects that received top scores from a pool of 22 grant applications. ...More

Research Grants

NBIA research advances with grant awards

NBIA researcher Dr. Penny Hogarth has been awarded startup funds to pursue a new area of NBIA study and to develop tests for gauging severity of the illness. ...More

WAM Research Support Award for 2014  
WAM Research Support Award for 2014

May 27, 2014
The Women in Academic Medicine Committee at Oregon Health & Science University is very pleased to announce that Allison Gregory is this year’s winner of the Research Support Award. ...More

2014 Run for NBIA Disorders  
2014 Run for NBIA Disorders

April 26, 2014
Miami University Genetics Club held its first 5K fundraiser for NBIA on the university campus in Oxford, Ohio on April 26, 2014 at 11 am. There was a DJ, food for racers, prizes for the top 3 male and female participants, and a raffle for all participants with various prizes. Registration was $10 pre-registration and $15 day of the race. The Genetics Club was originally formed with the sole intention of raising money for NBIA disorders, and this remains the primary focus of the group. This event raised $500 for our organization. ...More



Comedy Roast for NBIA Disorders  
Charity Comedy Roast of Keith Stover

March 1, 2014
Drusky Entertainment coordinated a Charity Comedy Roast of Keith Stover in March for NBIA. It was held at the Hard Rock Café in Pittsburgh, PA. ...More

NBIA Alliance
NBIA Alliance Call for Applications

The NBIA Alliance is accepting applications for travel grants for early career researchers to the Third Joint Symposium On Neurocanthocytosis and Neurodegeneration with Brain Iron Accumulation....More




ECRD 2014
European Conference on Rare Diseases & Orphan Products

NBIA Alliance members will present a poster on TIRCON and the NBIA Alliance at the European Conference on Rare Diseases & Orphan Products in Berlin. The conference is from May 8-10 and the poster will be presented on Friday, May 9....More


NBIA on Facebook


We are pleased to recognize Retrophin, a biopharmaceutical company focused on the discovery and development of drugs for the treatment of catastrophic diseases, based in New York, NY, for their ongoing support of the NBIA Disorders Association. ...More

Ody Sibon
Dr. Ody Sibon

In the Netherlands, when a researcher becomes a full professor, a special ceremony is held where he or she gives a lecture and is then feted at a big party with dinner and drinks. ...More