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2024 September Newsletter
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CoA Therapeutics Discontinues PKAN Clinical Trial
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Save the Date - 2025 Family Conference
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Thank you Legacy Guardian Peggy Davis.
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OUR MISSION
In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.
29 Years
Supporting Families & Raising Awareness
$2.8 Million
Research Funded Since Inception
10 Countries
Represented by NBIA Alliance
Newly Diagnosed
News
NBIAcure prepares to submit for FDA
approval of CoA-Z compound
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other educational handouts
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JOIN US
We invite you to be
a part of our NBIA community
Sign Up to Stay Informed
STAY CONNECTED
JOIN US
We invite you to be
a part of our NBIA community
Sign Up to Stay Informed
STAY CONNECTED
JOIN US
We invite you to be
a part of our NBIA community
Sign Up to Stay Informed
STAY CONNECTED
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Home
Family Support
We Can Help!
Newly Diagnosed
Connect with Us
Networking Program
Family Stories
Family Conferences
2025 Family Conference
2023 Family Conference
2021 Conference
2019 Conference
2017 Conference
Rare Disease Day
NBIA Alliance
NBIA Angels
NBIA Disorders
Overview of NBIA Disorders
BPAN
PKAN
PLAN
MPAN
FAHN
CoPAN
Aceruloplasminemia
Kufor-Rakeb
Neuroferritinopathy
Woodhouse-Sakati
Idiopathic NBIA
Research
Research Overview
Grants Program / Funding Opportunities
Grants Awarded
Contracts Awarded
Scientific Meetings
Clinical Trials
Connect with Us: Researchers, Clinicians, Therapists
Clinical Information
NBIA Centers of Excellence
Medical Information for NBIA Disorders
Diagnosing NBIA Disorders
Symptoms of NBIA Disorders
Genetics
Vision Disorders
Dystonia Pain Management
Botox for NBIA Disorders
Intrathecal Baclofen Pump
Deep Brain Stimulation
Deferiprone
Glossary of Medical Terms
Support Our Work
Donate Now
Gifts in Honor/Memory
Monthly Donors
Legacy Guardians
Major & Planned Gifts
Donation of Stock
Workplace Giving & Matching Gifts
Fundraise for NBIADA
Volunteer With Us
News
Newsroom
NBIA Newsletters
Educational Resources
About Us
Mission Statement
Message From the President
Board of Trustees
Our Staff
Our Scientific & Medical Advisory Board
Milestones & Accomplishments