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  • First Legacy Guardian Peggy Davis
  • 2024 September Newsletter


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  • CoA Therapeutics Discontinues PKAN Clinical Trial


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  • Save the Date - 2025 Family Conference


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  • Legacy Giving

    Thank you Legacy Guardian Peggy Davis.


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OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

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other educational handouts

 

How Can You Get Involved?

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Partners

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