• DecNewsletter
  • 2024 MDBR Grants
  • 9th Symposium
  • CoA Annoucement
  • Family Conference 2023
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

28 Years

Supporting Families & Raising Awareness


 

$2.8 Million

Research Funded Since Inception


 

10 Countries

Represented by NBIA Alliance


 

News

 NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

 ​Posters, flyers and
other educational handouts

 

How Can You Get Involved?

Donate Become A Volunteer Connect With Us

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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