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Connect With Us

The NBIA Disorders Association is the only organization in the United States providing specific support, information and services for NBIA disorders.

Who Connects with the organization?

  • An individual who is diagnosed with one of the NBIA disorders.
  • A parent whose child is diagnosed with one of the NBIA disorders.
  • A grandmother whose concern extends to the well-being of her child, not just her grandchild.
  • A family friend who wants to learn more about NBIA and how he/she can help.
  • A sibling who wants to know what to expect in the future.
  • Anyone who cares about someone with NBIA.

We invite you to be a part of our NBIA community... Tell us about you...

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Tell us about the person with NBIA in your life

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Other Information

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Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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