Our Mission
In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA), we provide support to families, educate the public and accelerate research with collaborators from around the world.
Our Vision
A world in which NBIA Disorders no longer causes suffering or loss of life.
Our Goals
- To provide a supportive environment in which people affected by NBIA and their loved ones can share needs, concerns and experiences.
- To share up-to-date information about treatment and care options with all members of the NBIA community.
- To increase recognition of NBIA among clinicians and other healthcare professionals and promote early diagnosis and access to optimal care.
- To participate effectively in the international NBIA community and foster collaboration with our affiliated NBIA lay advocacy groups in other countries.
- To build an expanding base of committed contributors who will help provide funds to achieve our vision.
- To encourage, guide and fund research to improve understanding, diagnosis and treatment, and ultimately, find a cure for NBIA disorders.
