Educational Resources

What is NBIA?

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Understanding Research brochure

How Research Works
Understanding the Process of Science

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NBIA brochure

NBIA Disorders Association – Who We Are

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NBIA brochure

NBIA Disorders Association – BPAN

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NBIA brochure

NBIA Disorders Association – FAHN

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NBIA brochure

NBIA Disorders Association – PKAN

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Metabolism & Energy Requirements in people with PKAN

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Patient & Family Experience with PKAN

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NBIA brochure

NBIA Disorders Association – PLAN

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NBIA brochure

NBIA Disorders Association – MPAN

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Guide To Patient Involvement In Rare Disease Therapy Development

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Sibling Support Ages 3-8

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Sibling Support Ages 9-15

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Sibling Support Ages 16+

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Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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