2023 Family Conference

2021 conference logo

12th International NBIA Disorders Association Family Conference

Houston, nicknamed Space City for being home to NASA’s Johnson Space Center, will host the 12th International NBIA Disorders Association Family Conference May 18 to 21, 2023.

The nation’s fourth largest city, Houston is the biggest city to ever host our family conference. It will be at the Hilton Houston Post Oak by the Galleria, 2001 Post Oak Blvd. The hotel is nicely situated, with easy access to airports, shopping and restaurants.

Like our 2019 conference, this one will feature disease-specific clinical meetings on the first day, Thursday, with a welcome dinner that night and an opportunity for families to mingle and feel more comfortable engaging throughout the weekend. The conference will conclude at noon on Sunday.

We also will live-stream some sessions as we have done in the past, and virtual participants will be able to engage by posting comments and questions, monitored by our social media director.

Hotel reservations are expected to open in the fall so that families can book and get the block rate of $139 for standard queen and king rooms. The block includes 12 handicapped-accessible rooms available on a first-come, first-served basis. We were conservative with the number of rooms being held, so don’t wait too long to make your reservation if you want the special rate.

Conference registration materials will be posted here in early 2023, and families will be notified when registration begins.

The hotel is 28 miles from George Bush Intercontinental Airport and 17 miles from William P. Hobby Airport. It is just a half mile from the shops and restaurants at the city’s famous Galleria – America’s fourth-largest mall – and three miles from Memorial Park and the Houston Arboretum and Nature Center. Downtown Houston is six miles away.

The light rail system’s METRORapid Silver Line runs along Post Oak Boulevard in dedicated lanes and has a stop about 350 feet from the entrance to the hotel. The metro has wheelchair accessibility with a fare of $1.25 for three hours. It goes to the Galleria and other places of interest, with service every 12 minutes. It is possible to transfer to a city bus that goes to the airport and other locations.

A limited number of scholarships will be available to help defray conference costs for some who otherwise couldn't attend. Depending on how many apply and how much our donors provide, we hope to help applicants by waiving registration fees and reducing their hotel costs. Other travel costs are not covered. Scholarship applications will be available when registration opens next year.

Please donate here to our Scholarship Fund – simply note in the comments box that your donation is for the Family Conference Scholarship Fund.

 

Family Conference Committee Looking For Volunteers

NBIA Disorders Association Vice President Amber Denton and board member Jennifer Sanchez are co-chairing the Family Conference Planning Committee and are looking for volunteers. We need help selecting topics for sessions, recruiting speakers, organizing child care and planning activities, including our memorial tribute, dessert social and closing ceremony. You do not need to attend the conference to be on the planning committee. If any of these tasks interest you, or if you have ideas to share, we want you! If interested in participating and learning more about volunteering, please contact Denton at adenton@NBIAdisorders.org or Sanchez at jsanchez@NBIAdisorders.org.

Conference Sponsor Information

We need conference sponsors to help us defray costs. We expect this conference to be our most expensive gathering ever. We strive to keep registration fees low, but we need sponsorships to make that possible.

If you know an individual or company that might be interested in sponsoring, please share our sponsorship letter and sponsorship information form with them. For additional information on being a sponsor, please contact Patricia Wood atpwood@NBIAdisorders.org or call 619 588-2315.

 

Sponsorship Opportunities

Sponsorship Letter

Sponsorship Submission Form

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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