2019 NBIA Disorders Association Family Conference

The Tenth International NBIA Disorders Association Family Conference was held May 30 to June 2, 2019, in Charleston, S.C.  The theme of the conference was "Beacon of Hope.:

2019 Conference Presenter2019 Family Conference Sessions

Many of the sessions at the 2019 NBIA Family Conference were video recorded. Click the button below to view a playlist of the available videos on our YouTube.com channel. You may select the videos you would like to watch from the playlist.

View Conference Sessions

2019 Family Conference Closing Ceremony Video

2019 Family Conference Photo Montage Video

2019 NBIA Beacons of Hope Video

This video was shown during the 2019 NBIA Family Conference.

Two children in the child care room2019 Family Conference Photo Galleries

See photos from the conference sessions, events, and activities:

View Conference Photos

View family photos, and group photos by NBIA disorder, State and Country:

View Group & Family Photos

Our Sponsors

Retrophin, Inc. was once again our premier conference sponsor. We are grateful for their continued sponsorship, going back to 2013. In addition, ApoPharma, Inc., and CoA Therapeutics are elite sponsors for our 2019 conference.

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nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

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