Privacy Policy

The NBIA Disorders Association respects your privacy. We never share, sell or rent individual personal information without permission.

The NBIA Disorders Association does not knowingly solicit information or contributions from minors under the age of 18 without the consent of a parent or guardian.

If at any time you wish to receive less information via mail or online, or if you have questions about any information the association is using, contact us at


When you access our website, information of a general nature is automatically collected by means of a cookie. This information (server log files) includes, for example, the type of web browser, the operating system used, the domain name of your Internet service provider and the like. This is exclusively information that does not allow any conclusions to be drawn about your person.

This information is technically necessary in order to correctly deliver the content of our website and is mandatory when using the Internet. It ensures a problem-free connection to our website.

Anonymous information of this kind may be processed by us. statistically evaluated in order to optimize our website and the technology behind it.

Cookies cannot be used to start programs or transmit viruses to a computer. Based on the information contained in cookies, we can facilitate your navigation and enable the correct display of our websites.

Of course, you can also view our website without cookies. Internet browsers are regularly set to accept cookies. In general, you can deactivate the use of cookies at any time via the settings of your browser. Please use the help functions of your Internet browser to learn how to change these settings. Please note that individual functions of our website may not work if you have deactivated the use of cookies.

Other Sites

The NBIA Disorders Association links to other sites that may be of interest to NBIA individuals or families. Anytime you leave the NBIA Disorders Association website, we cannot control or be responsible for any information that others may collect about you or share with others.




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