The NBIA Disorders Association respects your privacy. We never share, sell or rent individual personal information without permission.
The NBIA Disorders Association does not knowingly solicit information or contributions from minors under the age of 18 without the consent of a parent or guardian.
If at any time you wish to receive less information via mail or online, or if you have questions about any information the association is using, contact us at info@NBIAdisorders.org.
The NBIA Disorders Association links to other sites that may be of interest to NBIA individuals or families. Anytime you leave the NBIA Disorders Association website, we cannot control or be responsible for any information that others may collect about you or share with others.