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Demystifying Research Grants:
Deciding Where Your Money GoesOur webinar from 8/13/20 is now available to watch on-demand.
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Living with NBIA During the COVID-19 Pandemic
Information, Emergency Information Form, and Webinar Recording
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NBIA NEWS & INFORMATION
Record number takes part in 7th Scientific Symposium on NBIA
October 2020
The 7th International Symposium on NBIA & Related Disorders, held as a virtual event for the first time ever, attracted 160 participants from 26 countries.
BPAN Research Updates
October 2020
Professor Robin Ketteler and his team at University College London have completed drug screening for potential BPAN therapies and identified several candidates that will advance to the next level of testing. Read More |
A research team in the Netherlands is making progress in its study of how mutations in the WDR45 gene affect beta-propeller protein-associated neurodegeneration (BPAN). Read More |
Ongoing BPAN research, funded by the NBIA Disorders Association, is producing new insights into iron accumulation and cell damage in individuals who have Beta-propeller protein-associated neurodegeneration. Read More |
A recently completed BPAN study supported by the NBIA Disorders Association has led to a new understanding of how a genetic flaw causes the disorder and how it could be corrected. Read More |
Hoffnungsbaum e.V funds MPAN project at Helmholtz Zentrum Center in Munich
October 2020
A lab in Germany investigating the disease mechanisms in Mitochondrial Membrane Protein Associated Neurodegeneration (MPAN) received a grant of €151,540 euros ($178,741 USD) from Hoffnungsbaum e.V, the German NBIA patient organization.
Partners in Hope Monthly Giving
2020 Top-Rated Nonprofit Award
We have been honored with our second consecutive year of receiving a Top-Rated Award from GreatNonprofits! We appreciate all of your contributions!
