• First Legacy Guardian Peggy Davis
  • Researchers in laboratories
  • Untitled design
  • Family photos
  • Legacy Giving

    Thank you Legacy Guardian Peggy Davis.


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  • 2022 Million Dollar Bike Ride Pilot Grant Program Now Underway


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  • 8th International Symposium on NBIA


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  • Save the date for the 2023 Family Conference


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OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

​BPANready natural history
study funded until 2024

 

Educational Resources

​Posters, flyers and
other educational handouts

 

How Can You Get Involved?

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Partners

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