Educational Resources

What is NBIA?

Understanding Research brochure

How Research Works
Understanding the Process of Science

NBIA brochure

NBIA Disorders Association – Who We Are

NBIA brochure

NBIA Disorders Association – BPAN

NBIA brochure

NBIA Disorders Association – FAHN

NBIA brochure

NBIA Disorders Association – PKAN

Metabolism & Energy Requirements in people with PKAN

Patient & Family Experience with PKAN

NBIA brochure

NBIA Disorders Association – PLAN

NBIA brochure

NBIA Disorders Association – MPAN

Guide To Patient Involvement In Rare Disease Therapy Development

Sibling Support Ages 3-8

Sibling Support Ages 9-15

Sibling Support Ages 16+

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