February 2020

"Georgia is our beautiful daughter who was recently diagnosed with Beta Propeller Protein Associated Neurodegeneration (BPAN). She is two years old and has been a huge blessing in our lives. We started noticing some difficulties she was having at around 9 months old when she began falling behind in hitting her milestones (such as crawling and walking). That began our year-long journey to determine the cause. She currently sees speech, occupational, and physical therapists that support her growth in learning to talk, walk, crawl, and eat. Though she does experience more struggles than many of her peers, that isn’t what people remember her for. They look at her and see a beautiful, happy little girl who makes you feel as if you’re the most important person to her. She’s so special to so many people, and we are extremely blessed with an amazing support of family and friends. We are certain this unique journey she is on will be one in which God will use for great things! Georgia, you are so loved!"


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