February 2020

"I met Tonja (she has NBIA PKAN) four years ago when she came with her mother to the swimming therapy-Halliwick. She was very exciting and of course me too. After a few months she became a very good swimmer and she starts to compete with others in Slovenia, Croatia and Austria. She enjoys time swimming friends. We see that her serious illness is in slower progress."


nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes

Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.comAmazon Smile logo