Ose, Jared


August 28, 2001 – August 5, 2017

Goshen, Kentucky

Jared is our real life hero. He earned the nickname, “Superman” as he had an incredible fighting spirit as he fought against INAD. He is also known as our “Jarebear” for being sweet, loving, and cuddly.

He never received earthly healing but he healed a lot of hearts during his short time here on earth. He accomplished more in his nearly 16 years of his life, without a word, than many of us will ever accomplish in a lifetime.

People used to comment how we sacrificed for Jared but we never looked at in that way. Jared sacrificed his whole life. We miss him so much and our lives will never be the same. The pain is great because he was so great. It is worth it knowing he is finally healed. We look forward to spending time with him again in eternity. Until then, we will carry him in our hearts and he will continue to inspire us every day.

- Kristi, Ron, Jaclyn and Mitchell Ose


2021 Memorial Tribute


nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes

Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.comAmazon Smile logo