2012 June/July Newsletter

16 pages includes articles “Path to a Cure Campaign starting: goal $200,000 by April 2013,” “New biotechnology firm hoping to develop treatment for PKAN,” “Long-awaited U.S. deferiprone trial starting this fall in Oakland,” “Family makes it personal for pharmaceutical company,” “NBIA’s German sister group meets, celebrates 10 years,” “Researchers to gather in Netherlands to work on NBIA, related brain disorder,” “Australian NBIA families gather to learn, support each other,” At long last, my family has a big piece of the puzzle,” “Top 10 ways you can use social media for NBIA advocacy,” “NBIA groups springing up around the world.”

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