2011 Newsletters

2011 October/November Newsletter

16 pages includes articles “California researcher wins FDA grant to study deferiprone,” “Patients’ help needed to test deferiprone in NBIA patients,” “NBIA programs director Mike Cohn receives honor at Genetic Alliance Gala,” “Funding of grant in Europe accelerates NBIA research,” “German sister organization awarded grant to improve NBIA patient care.”

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2011 June/July Newsletter

16 pages includes articles “Sixth conference links families, researchers at NBIA organization’s 15th anniversary,” “Researchers seeking approval, funding for two different iron-chelation studies,” “NBIA research pressing ahead with collaborations worldwide,” “NBIA teen gives speech to his graduating class,” “New disorders now under NBIA’s evolving umbrella,” “World’s largest NBIA cluster found in Dominican Republic,” “New York neurologist describes ‘dystonic storms’ and treatments,”

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2011 February/March Newsletter

12 pages includes articles “Calling all donors, participants for this year’s family conference,” “Deferiprone trial set back when U.S. denies funding,” “Families, researchers, doctors gather in Italy to share knowledge about NBIA,” “Managing dystonia in NBIA patients: A treating doctor’s perspective,” “Two new members join NBIA board of trustees.”

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