2010 Newsletters

2010 October/November Newsletter

16 pages includes articles “Hayflick Lab Campaign attains fundraising goal,” “NBIA Disorders Association receives largest single donation in its history,” “Discovery of two new NBIA genes,” “Cameron Meade’s lasting gift: teaching others about NBIA,” ‘Third scientific gathering inspires more collaboration.”

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2010 June/July Newsletter

16 pages includes articles “The compound pantethine shows promise as possible future treatment for NBIA,” “Two-day symposium in DC area this October chance for NA and NBIA scientists to gather and collaborate,” “Clinical trial on deferiprone seeking patients; hoping for April 2011 launch,” “Mother who lost one son to NBIA has hope for the second son,” “Congressman asks for federal funding of $2.5 million for NBIA research,” “Now is a good time to do the family’s estate planning,” “NBIADA’s 2009 fiscal year one for the record books.”

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2010 February/March Newsletter

16 pages includes articles “Hayflick Lab Campaign Update – Well on our way to our goal!” “Two research grants awarded with help from sister organization in Italy,” “Third annual Rare Disease Day celebrated worldwide on February 28,” “NBIA Symposium in Munich gives scientists idea-sharing forum,” “NBIA families rise to challenge of lobbying Congress for funding,” “OHSU official aids NBIA in Capital Hill efforts.”

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