16 pages of the latest news and informative articles including “Together for Tomorrow now underway, sets goal of $200,000,” “Tanner’s journey continues with the TIRCON Extension Trial,” “Board welcomes two new members, elects a new chair and alters terms,” “PKAN mice arrive at OHSU,” “8th family conference heads to Minneapolis next May 28 to 31,” “Are you ready for NBIA’s challenges? OHSU has a plan and a new website,” “NBIA Alliance awards three travel grants to symposium.”

Read Newsletter




nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes

Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.comAmazon Smile logo