16 pages of the latest news and informative articles including “20 years old! We danced, picnicked and made new plans,” “Attention researchers: Save this date in April to meet,” “Researchers in Europe host meeting with BPAN families,” “Identifying NBIA research priorities key topic at meeting of families, researchers and board,” “Board adds new member” “Italian lab receives grant, drug access in quest to uncover PKAN treatments,” “Two more researchers join association’s Scientific & Medical Advisory Board,” “European grant will help researchers test drugs and supplements for MPAN,” “Mark your calendars: Our ninth family conference comes to Chicago in June,.” Board names fund in honor of founder and her daughter.”

Read Newsletter


nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes

Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!