8 pages of the latest news and informative articles including “Hayflick, Hogarth and Sibon team moving ahead on one of two drugs for PKAN,” “Home grown fundraisers in fall 2017 net $61,182 for our organization’s work,” “Board adds two members, three others leave positions,” “Sonja Olson Memorial, “Message from the President.”

Read Newsletter

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.comAmazon Smile logo