16 pages of the latest news and informative articles including, “Demand for family meeting strong as conference registration opens,” “Two new grants awarded to BPAN researchers in January,” “Two PKAN grants awarded this year in collaboration with sister groups,” “Fall grant awards planned for MPAN and BPAN studies,” “Rare Disease Day time to show your stripes,” “Three clinical trials are underway; two others are being planned,” “Recent NBIA fundraisers bring fun and $40,245 in support,” “Message from the President.”

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