8 pages of the latest news and informative articles including, “OHSU reports on plans to launch CoA-Z trial with help from grant,” NBIA board elects new chair, welcomes two new trustees,” “Italian NBIA community gathers for family conference,” “Summer, fall 2019 events raise more than $26,000,” “Beacon of Hope Campaign underway to support families,” “Message from the President.”

Read Newsletter

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.comAmazon Smile logo