2020 Newsletters

In this issue: 

  • #GivingTuesday SWLL Campaign
  • Family Conference Save the Date
  • Zoom Family Meetings
  • Holiday Gift Boutique
  • Fall Fundraisers
  • Tax Savings Information
  • Message From The President
  • Partners in Hope
  • Donors

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In this issue: 

  • Church supports member with NBIA
  • Message from Board Chair
  • Mauthe Research Update
  • Ketteler Research Update
  • MPAN Grant Award
  • Research Funding Webinar
  • Zhang Research Update
  • Seo Research Update
  • Fundraising News
  • Partners in Hope
  • Donors
  • NBIA Angel

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In this issue: 

  • FAHN Research Grant Awarded
  • New Members Join Board
  • BPAN Research Grant Awarded
  • NBIA & COVID-19 Webinar
  • NBIA Family Stories
  • #GivingTuesdayNow Campaign a Success
  • Fundraising News
  • NBIA Angels
  • Donors

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Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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