2021 September Newsletter
In This Issue:
- Family Conference Sets Attendance Record
- BPAN MDBR Grant Call Underway
- 25th Anniversary Celebration
- CoA Therapeutics Clinical Trial Update
- BPAN Grant Update
- RARE-X BPAN Platform Open
- BPAN Consensus Guideline
- BPAN Mouse Model Available
- Fundraising News
- Partners In Hope
- Donors
- NBIA Angels
