2023 Newsletters
2023 December Newsletter
In This Issue:
- Board Welcomes New President
- BPAN Grant Award
- Officer & Board Update
- GivingTuesday 2023
- "Ultimate Volunteers"
- PLAN Guidelines
- INAD Gene Therapy
- Dr. Hayflick Award
- BPAN Grant Collaboration
- Holiday Shop
- Poland Meetings
- INAD Fundraiser
- Rare Disease Summits
- Partners in Hope
- Donors
- NBIA Angels
- Message From the President
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2023 September Newsletter
In This Issue:
- Passing the Torch
- Family Conference Wrap Up
- 2023 MDBR Grant Call
- Lockhart Research Update
- Center of Excellence Award
- Caring for Caregivers
- Conference Keynote
- G-Tube Feeding Info
- Conference BPAN Research
- Rare Disease Therapy
- Movement Disorders
- NBIA Research Overview
- T.R.Y. Day
- Partners in Hope
- Donors
- Message From the President
- NBIA Angels
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2023 April Newsletter
In This Issue:
- BPAN Grant Call
- BPAN Grant Research Award
- 2023 MDBR Match
- SMAB News
- Family Conference News
- Thriving with PKAN
- Fundraising News
- Rare Disease Day
- Partners in Hope
- Donors
- NBIA Angels
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