2024 March Newsletter

In This Issue:

  • 2025 Family Conference
  • Grant Application Deadline
  • PKAN Gene Therapy
  • BPAN Grant Recipients
  • CoA-Z FDA Progress
  • Rare Disease Day 2024
  • Planting Seeds of Hope Fundraiser
  • PKAN Clinical Trial Update
  • 2024 Million Dollar Bike Ride
  • Family Fundraisers
  • Partners in Hope
  • Donor Listings
  • In Honor of
  • In Memory od
  • Message From the President

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nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

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