2025 March Newsletter

In This Issue:

  • 2025 Family Conference Registration Open
  • CoA-Z Submitted to FDA as Food Additive
  • 2024 Million Dollar Bike Ride Grant Update
  • Board Transitions
  • 2025 Million Dollar Bike Ride Open to Everyone
  • Stanford BPAN Research Begins
  • New Clinic for BPAN and NBIA Disorders
  • Rare Disease Day Celebrations
  • Poppy's Path Gala
  • Family Fundraisers
  • Partners in Hope
  • In Honor & Memory of
  • Message From the President

Read Newsletter

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.com

G-CFB5FV5NLL