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OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Merchandise Shop

- By Jennifer Wildvank

The NBIA Disorders Association is excited to announce a partnership with 4Gen Digital to launch our own online merchandise shop.

4Gen Digital is a woman-owned, family-operated business going back four generations in the printing, packaging and promotional product industry. The company’s guidance and generous in-kind support is making our shop possible.

Owner Jacqueline Thomas (momma bear to two little helpers) is based in Southern California and works alongside her father, Craig Thomas, at the company. We would also like to thank graphic designer Jacquelin Grater who designed our merchandise shop website as well as apparel and other merchandise.

Check out our new apparel, including our May 2021 conference shirts, tumbler, caps and buttons, along with several other items at this link:

Go Shopping

International shipping is available.

 

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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