• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

This short video provides valuable information about the NBIA Disorders Association network of support services for newly diagnosed NBIA families.
Watch Video

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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