• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Samantha

February 2020

"Samantha is our amazing four-year-old, she is also a rare disease warrior. On July 27, 2017 she was diagnosed with BPAN at just 20 months old. Every day she faces struggles and she does it with a smile on her face. Samantha proves every day that even the smallest can be mighty."

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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