• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Tonja

February 2020

"I met Tonja (she has NBIA PKAN) four years ago when she came with her mother to the swimming therapy-Halliwick. She was very exciting and of course me too. After a few months she became a very good swimmer and she starts to compete with others in Slovenia, Croatia and Austria. She enjoys time swimming friends. We see that her serious illness is in slower progress."

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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