• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Demystifying Research Grants:
Deciding Where Your Money Goes

Our webinar from 8/13/20 is now available to watch on-demand.

WATCH VIDEO

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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