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2021 Newsletters

September 2021 Newsletter

September 2021 Newsletter cover

17 pages of the latest news and informative articles about NBIA research, fundraising for NBIA disorders, the NBIA Disorders Association, and more.

In This Issue:

  • Family Conference Sets Attendance Record
  • BPAN MDBR Grant Call Underway
  • 25th Anniversary Celebration
  • CoA Therapeutics Clinical Trial Update
  • BPAN Grant Update
  • RARE-X BPAN Platform Open
  • BPAN Consensus Guideline
  • BPAN Mouse Model Available
  • Fundraising News
  • Partners In Hope
  • Donors
  • NBIA Angels

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April 2021 Newsletter

14 pages of the latest news and informative articles about NBIA research, fundraising for NBIA disorders, the NBIA Disorders Association, and more.

In This Issue:

  • Virtual Family Conference
  • MDBR Fundraising Match Underway
  • SMAB Welcomes Two New Members
  • MPAN Research Grant Awarded
  • BOAB Research Grant Awarded
  • Winning Rare Disease Day Video
  • Planning For The Future
  • Fundrasing News
  • NBIA Merchandise Shop
  • Partners In Hope
  • Donors
  • NBIA Angels

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