2022 Newsletters

September 2022 Newsletter

2022 September Newsletter

In This Issue:

  • NBIA Symposium
  • BPAN MDBR Grant Call
  • FAHN Research Update
  • 2023 Family Conference
  • Board News
  • BPANready Research Study
  • Legacy Gift
  • The Gift of Friends
  • Fundraising News
  • Partners In Hope
  • Donors
  • NBIA Angels

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2022 April Newsletter

2022 April Newsletter

In This Issue:

  • MPAN Grant Call
  • CoA Therapeutics Clinical Trial Update
  • BPAN MDBR Grant Award
  • Board News
  • Rare Disease Day
  • 2022 MDBR
  • Tax Saving Information
  • Sibling Story
  • Fundraising News
  • Partners In Hope
  • Donors
  • NBIA Angels

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