2022 Newsletters
2022 December Newsletter
In This Issue:
- Giving Tuesday Update
- NBIA Research Symposium
- PLAN Care Guidelines
- INAD Gene Therapy
- NORD PKAN Poster
- Two MPAN Grants Awarded
- CoA Z Trial Update
- Family Conference News
- Board News
- Fundraising News
- Partners in Hope
- Donors
- NBIA Angels
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2022 September Newsletter
In This Issue:
- NBIA Symposium
- BPAN MDBR Grant Call
- FAHN Research Update
- 2023 Family Conference
- Board News
- BPANready Research Study
- Legacy Gift
- The Gift of Friends
- Fundraising News
- Partners In Hope
- Donors
- NBIA Angels
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2022 April Newsletter
In This Issue:
- MPAN Grant Call
- CoA Therapeutics Clinical Trial Update
- BPAN MDBR Grant Award
- Board News
- Rare Disease Day
- 2022 MDBR
- Tax Saving Information
- Sibling Story
- Fundraising News
- Partners In Hope
- Donors
- NBIA Angels
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