2024 Newsletters
2024 December Newsletter
In This Issue:
- Symposium on NBIA
- BPAN Research Roundtable
- 2025 NBIA Family Conference
- Give the Gift of Hope
- Rare Disease Conferences
- Thankful November
- Giving Tuesday
- Donor Listings
- Partners in Hope
- In Honor of
- In Memory of
- Message From the President
- Holiday Greeting
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2024 September Newsletter
In This Issue:
- Conference Hotel Booking Open
- CoA-Z FDA Update
- PLAN Research Update
- Dr. Soo Award
- Neuroferritinopathy Trial
- UK BPAN Meet-up
- Special Education
- INAD Warrior's Gala
- Family Fundraisers
- Partners in Hope
- Donor Listings
- In Honor of
- In Memory of
- Message From the President
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2024 July Newsletter
In This Issue:
- CHOP Center of Excellence
- CoA Therapeutics Announcement
- MPAN Research Update
- PLAN Grant Recipient
- BPAN Grant Update
- Million Dollar Bike Ride
- Gene Therapy Updates
- A Father’s Journey
- Honoring Rare Moms and Dads
- Community Fundraisers
- Partners in Hope
- Donor Listings
- In Honor of
- In Memory of
- Message From the President
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2024 March Newsletter
In This Issue:
- 2025 Family Conference
- Grant Application Deadline
- PKAN Gene Therapy
- BPAN Grant Recipients
- CoA-Z FDA Progress
- Rare Disease Day 2024
- Planting Seeds of Hope Fundraiser
- PKAN Clinical Trial Update
- 2024 Million Dollar Bike Ride
- Family Fundraisers
- Partners in Hope
- Donor Listings
- In Honor of
- In Memory od
- Message From the President
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