English French German Italian Spanish

Contracts Awarded

  • January 2017: International NBIA Patient Registry and Biobank, housed at Ludwig Munich University (Registry) and Technical University Munich (Biobank), Munich, Germany. Funding to support registry and biobank through December, 2018. NBIA Disorders Association as fiscal agent for the NBIA Alliance. $122,000.

  • June 2015: International NBIA Patient Registry and Biobank, housed at Ludwig Munich University (Registry) and Technical University Munich (Biobank), Munich, Germany, 30,000 €/$35,000 to financially support these valuable resources for the NBIA community. Other NBIA Alliance member organizations are also financially supporting this effort for a total of $84,400 for an 18 month period.

  • September, 2014: Oregon Health & Science University, Portland, OR. “Gene Therapy Mouse Phenotyping.” $119,993. Project started with the delivery of mice from OZgene Pty Ltd. in September, 2014. Final contract price $147,993.00 completed in March, 2017. Mice being kept for future use in cryopreservation storage at this time and available for re-derivation of lines by requesting investigators.

  • March 2012: OZgene Pty Ltd, BentleyWA, Australia. “Gene Targeted heterozygous mice.” $52,415. Project completed in September, 2014 with the delivery of mice to OHSU in September, 2014.

  • January 2012: Oregon Health & Science University, Portland, OR. “Best Practices in the Care and management of People with NBIA.” $16,116.67. Total cost $48,350.01. Partners in this project were AISNAF, the Italian NBIA organization and Hoffnungsbaum e.V., the German NBIA organization. Project completed in September, 2016 and published in March, 2017. ”

Text Size

Best Practices for PKAN

PKAN Best Practices

Read Article

This article is also available on the Molecular Genetics and Metabolism website.

Survey

OHSU

Oz Gene

Connect with Us

Researchers, Clinicians & Other Professionals

Connect with Us

Connect with Us

Donate Now

Sign-up for our Newsletter