• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

OHSU Submits CoA-Z Food Additive Petition to FDA

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Living with NBIA During the COVID-19 Pandemic

Information, Emergency Information Form, and Webinar Recording

MORE INFORMATION

Beacon of Hope Campaign

Please help with our Beacon of Hope campaign for family support.

GIVE

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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