• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

NBIA Online Merchandise Store

Check out all of our new products!

GO SHOPPING

11th International Family Conference

Being held VIRTUALLY May 20-23, 2021

MORE INFO

Demystifying Research Grants:
Deciding Where Your Money Goes

Our webinar from 8/13/20 is now available to watch on-demand.

WATCH VIDEO

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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