We remember those who have passed away from NBIA disorders and publish memorials written by family members on this site.

If you have a loved one who has died, you may submit a memorial, along with one photo to the NBIA Disorders Association. You must be an immediate family member or get the family’s permission before we can publish it. All memorials should be sent to info@NBIAdisorders.org and permission must be given to edit for content and length. Information that should be included is date of birth, date of death, full name and city, as well as the state or country where the person lived.